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First of two parts

Assistive Technology a Big Help to People Who Stutter

By John M. Williams

The 10-year-old pupil stands next to his desk. He is a normal-looking boy and is alert, energetic and full of dreams. Before he speaks, he weighs his words. In the past when he spoke, his speech was characterized by repetitions (li-li-like this), prolongations (lllllike this), or abnormal stoppages (no sound) between syllables. Besides facial and body movements associated with the effort to speak, he experiences subconscious, automatic behaviors that include rapid and shallow breathing, rapid heart rate, elevated blood pressure, sweaty palms, flushing of the skin, eye blinking and pupil dilation. He also feels fear, anger, relief, embarrassment, frustration and guilt.

Today, Ben Kordsmeier, a resident of High Point, N.C., is changing his old speaking patterns. In his left ear, he is wearing what looks like a hearing aid. In fact, when he started wearing the SpeechEasy (www.speecheasy.com), people asked him, “Are you wearing a hearing aid?”

After using the SpeechEasy for two years, Kordsmeier speaks fluently and appears confident. When he finishes, displaying a broad smile, he sits down. He is not as fatigued as he had been in the past when he stuttered nearly all the time. “I am no longer afraid to stutter,” he says fluently in a telephone conversation.

Kordsmeier is not alone in the pride he relishes in being fluent. Thirteen-year-old Dane Stephens of Overland Park, Kansas, and 15-year-old Austin White of Houston, Texas, have identical feelings. They also use the SpeechEasy. For most of their lives, the three boys have stuttered. The American Speech-Language-Hearing Association (www.asha.org) defines stuttering as “a disorder of speech fluency that interrupts the forward flow of speech.” ASHA is the professional, scientific, and credentialing association for more than 120,000 members and affiliates who are audiologists, speech-language pathologists, and speech, language and hearing scientists.

"There is power in fluency,” says Stephens, who asserts that his life has changed since he started using the SpeechEasy. His peers no longer tease him and, because stuttering tires the speaker, he is less tired. He is less angry about his stuttering, is making more friends and feels more positive about his abilities.

All individuals lack fluency of speech at times, but what differentiates the person who stutters from someone who doesn't are the kind and amount of disfluencies.

The SpeechEasy is a portable and inconspicuous fluency-enhancing prosthetic device that fits in or behind the ear. The product is designed to emulate choral speech -- a phenomenon that has been found to induce fluency among people who stutter. For years, it has been known that when people who stutter speak the same material in unison with another speaker, they become fluent. This is known as "choral speech." By allowing the user to hear his or her own voice with a pitch shift and a slight time delay, SpeechEasy creates the illusion of another speaker speaking at the same time, thereby emulating choral speech. The device creates this choral speech pattern through altered auditory feedback (AAF) that consists of a combination of delayed auditory feedback (DAF) and frequency altered feedback (FAF).

Altered auditory feedback (AAF) means hearing your own voice in a manner that is slightly different from the way you normally hear it. It allows the SpeechEasy user to listen to his or her own voice with a combination of delayed auditory feedback (DAF) and frequency altered feedback (FAF). Using DAF allows the user to hear his or her own voice with a slight delay, similar to an echo. FAF allows the user to hear his or her own voice with a shift in the pitch, so the signal heard is either at a slightly higher or slightly lower pitch than the user's own voice.

Four factors contribute to the development of stuttering: genetics (approximately 60% of those who stutter have a family member who does so); child development (children with other speech and language problems or developmental delays are more likely to stutter); neurophysiology (recent research has shown that people who stutter process speech and language in different areas of the brain than those who do not); and family dynamics (high expectations and fast-paced lifestyles can contribute to stuttering). Stuttering may occur through a combination of factors and may have different causes in different people. It is probable that what causes stuttering differs from what makes it continue or worsen.

According to the Stuttering Foundation of America (www. sfa.org), stuttering affects four times as many males as females, and about 3 million people in the United States, approximately 1 percent of the population, stutter.

Among the many famous people who have stuttered are the Greek orator Demosthenes; Aesop, the author of children’s fables; Roman emperor Claudius; scientists Aristotle and Sir Isaac Newton; nurse Clara Barton; author Lewis Carroll; Bishop Thomas Becket; Senator Joseph Biden; Congressman Frank Wolf; naturalist Charles Darwin; the Reverend Cotton Mather; statesman Winston Churchill; Olympic diving champion Greg Louganis; professional football players Lester Hayes and Bo Jackson; novelist John Updike; short-story writer Washington Irving; Annie Glenn (wife of astronaut and former Ohio senator John Glenn; singers Mel Tillis, Carly Simon and Robert Merrill; former General Electric CEO Jack Welsh; actors Jimmy Stewart, Marilyn Monroe, Peggy Lipton, Dean Jagger, James Earl Jones, Bruce Willis and Anthony Quinn; President Thomas Jefferson; former basketball great Bill Walton; and ABC’s John Stoessel.

“It makes me feel proud to be among these famous individuals,” Stephens says.

Laura Doty, in an article titled "Famous People Who Stutter" (http://www.d.umn.edu/~cspiller/stutteringpage/famous.htm), mentions a number of techniques tried by people who stuttered to gain fluency. She wrote: "Cotton Mather was an author, a leader of the Puritans, and a prosecutor of the Salem witch trails. The first book he wrote was on stuttering in America. Mr. Mather tried many methods to treat his stuttering, some successful, such as speaking in a drawling or singsong fashion, and some unsuccessful, such as fasting and prayers.

On the effects of stuttering on Marilyn Monroe, Day wrote: "(Her) signature breathy way of speaking may have been her way of treating her stuttering. She seems to have been taught by a speech coach to use exaggerated mouth movements and a breathy and affected speaking style to control her stuttering."

On Churchill’s method of obtaining fluency, she wrote: "(He) was considered the best orator in Parliament despite the fact that he was a stutterer. He went to great lengths to hide and avoid stuttering. A great deal of preparation went into all his speeches. Churchill wrote them out well in advance, often weeks, of when he would have to give them. He memorized them forward and backward so he could practice them. Before beginning to give a speech, Churchill would hum discreetly to himself to get his vocal folds vibrating."

Using technology to control stuttering or gain fluency does not happen overnight. Some people have found that a combination of speech therapy and assistive-technology products can produce fluency. (Assistive-technology products are mechanical aids that substitute for or enhance the function of some physical or mental ability that is impaired.) The earlier that stuttering is recognized and treated by a speech-language therapist, the more effective that intervention will be. Parents or guardians who notice their child stuttering should seek advice from the Special Education Services (SES) as soon as possible.

A person growing up with a stutter may feel discrimination, rejection, failure and ridicule. Those feelings can lead to a lack of self-esteem and less confidence. A person who stutters might appear shy, unintelligent or non-assertive, even if that is not the case. People who believe that stuttering is shameful or wrong or makes them different from others may harbor feelings of isolation, loneliness and humiliation.

Stuttering was one of reasons that Lewis Carroll, who wrote "Alice in Wonderland," was not accepted into the Catholic priesthood. Frustrated and deeply pained about his stuttering, he wrote this poem:

"Learn well your grammar, And never stammer, Write well and neatly, And sing soft sweetly, Drink tea, not coffee; Never eat toffy. Eat bread with butter. Once more don't stutter ."

(Part 2 of this article will appear in the next issue of Independence Today.)

John M. Williams, a stutterer for 56 years, has written many articles on stuttering. He can be reached at jmmaw@verizon.net.

John William's Blog is available on the home page of http://www.ilusa.com.


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