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Activists, Lawyers an Essential Team in Reform Movement

By Mike Ervin

Lawyers and activists working together using litigation always have been crucial in advancing the cause of disability rights.

Scales of Justice

This was illustrated again last fall. California Governor Arnold Schwarzenegger has been hell-bent on making drastic cuts in the state’s In-Home Support Services (IHSS) program. Under the budget approved in July, more than 120,000 people with disabilities would have had the vital in-home assistance they receive through the program cut off or significantly reduced. Street activists fought back in the manner they know best: They protested. They sat outside Schwarzenegger’s office until they were hauled away by security. They did what they could to draw media attention to the injustice.

But it took a lawsuit to stop the cuts from being implemented. On October 19th, U.S. District Court Judge Claudia Wilken enjoined the state from eliminating or reducing anyone’s IHSS support until a lawsuit challenging the cuts could be heard. The suit was filed by Disability Rights California (DRC), the California protection and advocacy agency, on behalf of five plaintiffs who are IHSS recipients.

Last summer, David Oster of Torrance, Calif., who has autism and is bipolar, was scared to death that he would lose his IHSS support. Through IHSS, his aide, Juila, assists him up to 63 hours a week with tasks such as housework, food preparation and taking medication.

“Julia’s like second family,” Oster said. “Before I received services, my apartment was out of place. I was completely off.” He said Schwarzenegger’s budget cuts would eliminate him from IHSS. “I heard about the cuts and I had a nervous breakdown. I had to go into the mental hospital.”

So he contacted DRC for help. Before he knew it, he was a plaintiff in a class-action lawsuit, V.L. v. Wagner, that challenged the cuts. Outside the courthouse before the hearing at which Wilken issued her injunction, about 100 people rallied in their slickers in a drizzle. Oster stood on a wooden bench and addressed them with a bullhorn. “I said my name is David Oster. I’m a name plaintiff. I said I live independently. I said I didn’t want to go back into the mental hospital, so please don’t cut IHSS."

For me, this brought to mind the protracted but successful battle for public transit access some of us waged in the courts and the streets of Chicago in the 1980s. At the time, there wasn’t a single lift-equipped main-line bus in Chicago.

Some of us formed a chapter of Americans Disabled for Attendant Programs Today to demand that the Chicago Transit Authority (CTA) order only accessible buses. We blocked a downtown intersection and were arrested. We disrupted CTA board meetings with noisemakers and bullhorns. But, ultimately, it was a court decision that forced the CTA to surrender. Street activists with bullhorns and T-shirts successfully collaborated with lawyers with their business suits and briefcases. But it wasn’t a partnership without tension and doubt.

The 1980s lawsuit, Jones v. CTA, was initiated by the Chicago Lawyers' Committee for Civil Rights Under Law. Jeff Gilbert was an attorney at a Chicago law firm but had little experience in disability civil rights cases. He specializes in securities law.

“When I first got involved, I expected to win for my clients because that is what I do," Gilbert said. "I had no appreciation for the enormity of the challenge. I did not fully appreciate the time and resource commitment the case would require.” The Jones case was filed in 1983 but not settled until 1988. The trial lasted 10 weeks.

During that five-year period, we in ADAPT kept pursuing our access demands on the streets. We didn’t trust the courts. We had every confidence in the righteousness of our cause and the excellence of our lawyers. But judges are fickle beasts, as susceptible to cultural and political prejudices as everyone else. You can do everything right in court and still lose.

We hit the streets even though our lawyers counseled against it. Gilbert worried that our theatrics would undermine the lawsuit. “I want to litigate the case in the court rather than in the media," he said. "My general view is that you lose control when your message is translated through a third party. You also run the risk of prejudicing the court or judge against you. And I thought that aggressive protests could further polarize the two sides and make it harder to resolve things if settlement became an option.”

Rachel Scherer, a DRC attorney who has worked closely with Oster on the Wagner case, said attorneys and plaintiffs alike were in favor of the rally outside the courthouse.

“I think it’s inspiring," Scherer said. "People showed up because it was so important to them to prevail. They wanted to offer support for the attorneys, for the plaintiffs, for people they love and care about. It makes everyone realize all the people that are impacted. It makes it real and personal, and it fires you up a little as you go into the courtroom.”

But wasn’t there a risk that the judge might feel unduly pressured and thus resentful? “Maybe in certain circumstances,” Scherer said. “But in this case, having persons with disabilities have a voice in all this was outweighed by any harm it could have done. There’s no point in silencing that.”

Dara Shur, DRC’s director of litigation, said it is also important for plaintiffs and their lawyers to assess how drawing media attention to a case may influence the resolution of the issue the case addresses outside the courts.

"We have a full-time communications director," Shur said. "We work closely with our allies and clients to determine when and how it is important for the public to know about our litigation. Because of its broad and serious impact, this case has received a lot of media attention. We are hopeful this will help educate legislators when new budget cuts are discussed in this coming year.”

In the Jones case, lawyers and plaintiffs agreed to let each other do their thing. When our lawyers needed a show of solidarity, we sat in the courtroom gallery and behaved. When we testified, we washed up and dressed up. But we continued to harass the members of the CTA board who refused to submit to our demands. When a judge ruled in our favor on Martin Luther King Jr. Day in 1988, it was front-page local news.

What does Gilbert think lawyers and activists can learn about working together from the Jones case?

“I think we formed a good team because we all were willing to listen to each other. We also respected each other. We tried to understand each other's perspectives and what we needed from each other in order to accomplish the shared goal of access to main-line transit.”

Personally, I still don’t trust the courts as the sole forum for grievance. I believe now as I did then in piling it on, in applying pressure on any front that might lead to success. But quite often the courts are one of these fronts. The best way to ensure that the disability community wins genuine victories in court is for lawyers to closely collaborate with activists who are the most seriously affected by the outcomes of the cases.

Mike Ervin is a writer and member of ADAPT, a group that works for the civil rights of people with disabilities.


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